Tuesday, June 17, 2014

Hope for Edie

 
Dear friends and family,

I have the opportunity to attend church with four year-olds for two hours straight each Sunday. In our church, we call these little gems 'Sunbeams', and they happen to be just a little older than Edie. Oh boy, they are full of sunshine. They love to chat, wiggle, get drinks from the drinking fountain, go to the potty, help out, do puzzles, and eat snacks. They also love to learn about how our Heavenly Father loves us. We often learn this simple, perfect message through songs. We are currently working on learning a song called, "The Family is of God" by Matthew Neeley.


Our Father has a family. It’s me!

It’s you, all others too: we are His children.

He sent each one of us to earth, through birth,

To live and learn here in families.
 
God gave us families to help us become what He wants us to be—
This is how He shares His love, for the family is of God.
 
I wish you could hear several young children sing this with a conviction that makes me pause every time I hear it. I know its message is true. To me, this song summarizes why we have hope for Edie and her family. She is part of our family, and we love her. She is helping us to become what our Heavenly Father wants us to be. We want to help her become what Heavenly Father wants her to be. Maybe she can become a wiggly 'Sunbeam' one day soon.
 
We have been touched by her and the countless others that make up the pages in her incredible story. We sincerely wish that you feel the power of hope and recognize that this is our way to share Our love.
 
Respectfully,
 
Alisa Reynolds (Edie's cousin)
 
 
Photo: 5-7-14
Edie is helping change her clave.  She really loves to participate in her care.  
Lots of fluid, blood, and antibiotic over night in PCMC and they sent us home.  They want us to rest up at Kristy's home before we COME HOME TOMORROW! :). Yea!  we get to come home for the weekend.  I was so worried about coming home because she just wasn't doing well enough. She is still not super energetic, she has no immunity, she is on a massive amount of antibiotic, but she will really enjoy seeing her family and loved ones and our home. After all, she is plumb full of fresh new blood! :)
We will need to be back for clinic on Monday 12:00 noon.  Hopefully her numbers will be high enough to go right into the hospital for our 1st 21 day block in PCMC.  I have a feeling she won't be ready by Monday though.  We'll go in whenever she is ready.
I can't wait to be home for a couple days!
XOXOXO from Murray UT
Cara and Edie
 

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